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Offline Peter.pheochromocytomasupportboard

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17 04/29/09 22:41:10 06/01/09 20:29:43 04/11/06
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02/23/09
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My Bio

Functioning Paraganglioma (SDHB c.590C>G). First tumour removed 2000; First symptoms in 7/04; diagnosed 1/06. Tumours on C6/7, L5/S1, skull + many other bones and two abdominal lesions. Treatment w/ radiotherapy (X 6 sets) and MIBG (Edmonton X 8). January '09, Sunitinib (Tyrosine Kinase Inhibitor) at BCCA in Vancouver.

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